Welcome to the Nottinghamshire Appliance Management Service Patient Steering Group (NAMS PSG)

Background

The PSG was first formed at the inception of the Nottinghamshire Appliance Management Service back in 2016 and was a criteria of the contract issued to Fittleworth Medical by the Integrated Care Board (ICB). Historically the PSG has been run by the NAMS team, but recently responsibility has been turned over to the patients on the PSG to assume ownership and run the meetings.

Purpose

The main purpose of the PSG is to provide a link between the patient, the Nottinghamshire Appliance Management Service and the ICB and to ensure that patient welfare is at the heart of what the service provides.

Aims

The aims of the NAMS PSG are fourfold:

Firstly, we are here to facilitate good relations between ICB Commissioners, the NAMS service and patients using the service by communicating patient experience, interests and concerns.

We seek to work collaboratively and positively with all stakeholders to improve the services and facilities for patients and to act as a sounding board for future proposed developments that may affect patients.

We endeavour to build two-way communication and co-operation between NAMS and patients, and other individuals and organisations in healthcare, and their wider community to the mutual benefit of all.

And to act as a representative group to support and encourage the ongoing development of the NAMS service in delivering stoma care services.

People

The NAMS PSG has a capacity for fifteen members comprising of the following:

• One place for each of the three main recognised patient groups IA, CUK and UA
• A maximum of five places for one member from each of the local patient support groups. These are largely based or linked to the main hospitals within the region
• A maximum of seven places drawn from the NAMS patient base.

In addition the PSG may co-opt individual members if needed to ensure that it is fully representative of the patient community. The PSG Chair may also invite guests to support an item of interest at any one of the PSG meetings.

Activities

The NAMS PSG generally meet quarterly, usually at the NAMS facilities at Phoenix Park. The purpose of these meetings is to further the aims of the PSG and to review ongoing or new initiatives for the benefit of all.

Our aim is to develop this section of the website further in order to provide a one-stop shop for our information and make it easily available for the majority of patients.

We have a piece of work underway to produce an easy to understand non-clinical leaflet, explaining the service and other support available to new patients.

We are working with the NAMS team and looking into the feasibility of holding patient support days where patients will be invited to a day of activities designed to help them understand what is available and how they can make the most of the service.

Contact

We are always willing to answer any questions and would be delighted for you to contact us with any issues, thoughts or suggestions that you may have.

You can do so by emailing us at psg_nams@outlook.com

We aim to continuously add to and improve the information available on this page so please bookmark it and visit again soon.
You can also contact the main stoma support groups, many of which have local branches, using the information below.

National Support Groups

Ileostomy and Internal Pouch Association

Website: www.iasupport.org
Phone: 0800 018 4724
Email: info@iasupport.org

Colostomy UK

Website: www.colostomyuk.org
Phone: 0800 328 4257
Email: info@colostomyuk.org

The Urostomy Association

Website: www.urostomyassociation.org.uk
Phone: 01386 430140
Email: info@urostomyassociation.org.uk

Local Support Groups

The City Hospital Stoma Group

A well established and friendly group that has been running for over 55 years. They meet at the Outpatients Department in the City Hospital on the first Saturday of the month between 09:30 and 12:00.

There are always at least two stoma nurses at every meeting with facilities to see anyone with a stoma query in private. Drinks are always available and they often have guest speakers. A very inclusive and friendly group.

Contact Information

City Hospital Stoma Department (answerphone): 0115 962 7736
Mrs Bow Heath (patient representative): 0115 966 3073

North Notts Stoma Support Group

We are a small and friendly independent group operating and supporting ostomates principally from the Mansfield area but welcome anyone who feels they may benefit from group sessions. The group encourages partners, husbands and wives as they, too, can also be affected by this change in lifestyle.

We have been operating for the past 24 years. After years of different meeting places, including a number of years at Clinic 3, Kings Mill Hospital we now, since 2020, have our own meeting place at Harwood Court Community Centre. We meet every 2nd Saturday of the month, 10.00am-12.00 noon. There is free parking available, plus a local bus route.

Harwood Court Community Centre,
Harwood Close, Skegby Road,
Sutton-in-Ashfield NG17 4PD

For more information contact either Tore or Nicky Norman
Telephone: 01773 715460
Mobile: 07985 163 477
Email: toreno@sky.com
Website: www.northnottsstomasupportgroup.co.uk
Facebook: North Notts Stoma Support Group

QMC Stoma Support Group

A friendly supportive self-help group for anyone with a stoma created as either a colostomy, ileostomy or urostomy. Friends and Carers are also welcome. We have an interesting programme and meet monthly on the 3rd Saturday of the month 10 am to 12 noon at Dunkirk Community Centre, The Old School, Montpelier Road, Dunkirk, Nottingham NG7 2JW.

Robin Ford (Chair)
Telephone: 01157786463
Email: hello@nottingham-stoma-support-group.uk
Website: https://nottingham-stoma-support-group.uk
Facebook page: https://www.facebook.com/StomaSupportGroup
Facebook private group: https://www.facebook.com/groups/qmcstomasupport
Instagram: https://www.instagram.com/nottsqmcstomasupport

Links